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Webinar: Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life
Thursday 10 Aug 2023
12:00 PM - 3:00 PM
Webinar: Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life Thursday, August 10th | 12:00 to 3:00 PM
This is a workshop series and part 1 of the series will consider the type/range of care and services people with Amyotrophic lateral sclerosis (ALS) and their families need, and how to ensure they receive that care.
ALS is a rapidly progressive, invariably fatal neurological disease. Individuals impacted by ALS include those living with the disease, their caregivers, and presymptomatic individuals at risk for developing ALS. Currently, no treatments are available to stop or reverse the disease, although various FDA-approved formulations may extend life by several months
The National Academies ad hoc committee, “Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life,” will hold a virtual public workshop series to examine key actions the public, private, and nonprofit sectors can take to make ALS a livable disease within the next decade.
Information to access the event will be sent via email upon registration.